Emily's daughter's story

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My mother, Emily, was diagnosed with Alzheimer's in 2004. At the time, I was also looking after my young son, my marriage and the family business.

As the Alzheimer's took hold, Mum needed more support and eventually she couldn't be left alone. She was confused, having hallucinations and was always anxious.

I had to battle for 18 months to get a 24 hour care package for Mum. This meant that I could care for her because I wanted to, not because I had to. With the right package, Mum became settled in her routine. She became calmer and less anxious.

Then the local authority withdrew the care package, telling us it had only ever been temporary. I battled for six months until it was agreed that the 24 hour care package would stay in place.

In March 2008, all we had was a 15 minute chat and that was the annual review. I couldn't get through to anyone who would tell me what was supposed to happen. I was never asked if I needed any help and it was assumed that I would do it all.

People have a bad impression of Social Services - that they don't listen and don't do what you want them to. Sometimes that's true. When I tried to get help, the door was always closed.

Fight for a fair system, take action now.

*This individual has asked to remain anonymous to protect their identity.





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